Despite their expertise and contributions, people living with and impacted by ALS/MND are still blocked from attending some scientific forums sponsored by organizations that are supposed to be serving the community, and organizations still limit their participation and ignore their concerns. As such, ALS/MND advocates turned to the HIV community to learn from how they demanded — and received — seats at decision-making tables. Inspired by the Denver Principles, a landmark document drafted by HIV/AIDS activists in 1983, ALS/MND advocates sought to create the first guidance document to outline people living with ALS/MND’s expectations regarding their inclusion in matters directly affecting them. The Morris Principles serve as a social contract solidifying the necessary involvement of people living with ALS/MND.